How do caregivers of children with congenital heart diseases access and navigate the healthcare system in Ethiopia?

ABSTRACT:

Background

Surgery can correct congenital heart defects, but disease management in low- and middle-income countries can be challenging and complex due to a lack of referral system, financial resources, human resources, and infrastructure for surgical and post-operative care. This study investigates the experiences of caregivers of children with CHD accessing the health care system and pediatric cardiac surgery.

Methods

A qualitative study was conducted at a teaching hospital in Ethiopia. We conducted semi-structured interviews with 13 caregivers of 10 patients with CHD who underwent cardiac surgery. We additionally conducted chart reviews for triangulation and verification. Interviews were conducted in Amharic and then translated into English. Data were analyzed according to

SUBMITTER: Choi S 

PROVIDER: S-EPMC7852139 | biostudies-literature | 2021 Feb

REPOSITORIES: biostudies-literature