Cerebral Palsy Research Network Clinical Registry: Methodology and Baseline Report.

ABSTRACT:

Objective

To apply practice-based evidence to clinical management of cerebral palsy (CP). The process of establishing purpose, structure, logistics, and elements of a multi-institutional registry and the baseline characteristics of initial enrollees are reported.

Design

A consensus-building process among consumers, clinicians, and researchers used a participatory action process.

Setting

Community, hospitals, and universities.

Participants

More than 100 clinicians, researchers, and consumers and more than 1858 enrollees in the registry.

Main outcome measures

Not applicable.

Results

Consensus was that the purpose of registry was to (1) quantify practice variation, (2) facilitate quality improvement (QI), and (3) perform comparative effectiveness res

SUBMITTER: Gross P 

PROVIDER: S-EPMC7853390 | biostudies-literature | 2020 Sep

REPOSITORIES: biostudies-literature