Sharing Patient-Controlled Real-World Data Through the Application of the Theory of Commons: Action Research Case Study.

ABSTRACT:

Background

Technological advances have radically changed the opportunities for individuals with chronic conditions to practice self-care and to coproduce health care and research. Digital technologies enable patients to perform tasks traditionally carried out by health care professionals in a more convenient way, at lower costs, and without compromising quality. Patients may also share real-world data with other stakeholders to promote individual and population health. However, there is a need for legal frameworks that enable patient privacy and control in such sharing of real-world data. We believe that this need could be met by the conceptualization of patient-controlled real-world data as knowledge commons, which is a resource shared by a group of people.

Objective

This s

SUBMITTER: Hager A 

PROVIDER: S-EPMC7854041 | biostudies-literature | 2021 Jan

REPOSITORIES: biostudies-literature