Functioning in adult patients with idiopathic inflammatory myopathy: Exploring the role of environmental factors using focus groups.

ABSTRACT:

Objective

Health-related quality of life is impaired in idiopathic inflammatory myopathies. This study aimed to identify the main areas of the health-related quality of life environment domain that are affected in patients with myositis.

Methods

A qualitative study was performed using focus groups and applying the International Classification of Functioning, Disability, and Health. Participants were recruited from a cohort of 323 adult inflammatory myopathy patients consulting at a reference center for idiopathic inflammatory myopathy in Spain, selected by the maximum variation strategy, and placed in focus groups with 5 to 7 patients per group. The number of focus groups required was determined by data saturation.

Results

Twenty-five patients distributed in 4 focus g

SUBMITTER: Armadans-Tremolosa I 

PROVIDER: S-EPMC7877601 | biostudies-literature | 2021

REPOSITORIES: biostudies-literature