Dataset Information

Development and evaluation of an illustrated paediatric leaflet 'Coming to Hospital: a guide to what goes on'.

ABSTRACT:

Background

A paediatric information leaflet was produced to better prepare patients for time spent in hospital and to improve experience by informing them what to expect.

Methods

The 'Coming to Hospital' leaflet was designed with input from paediatric research groups, and in collaboration with a children's author and publishing company. A questionnaire to evaluate the leaflet was developed; face validity was established in a pilot. The real-time patient experience of these leaflets was evaluated on paediatric wards in a university hospital.

Results

The evaluation revealed that a significant majority of children 'really liked' the leaflet and found it helpful. 53 out of 72 of children reported that the leaflet made them feel 'happy' or 'calm', with no children responding that it made them feel 'very worried'. The leaflet was found to be informative, well presented and reassuring. Many parents stated that they wished they had received the leaflet prior to their child's first hospital visit. Suggestions for changes to the leaflet were minimal; it was considered to include all relevant information.

Conclusion

A leaflet designed by clinical staff, patients and a publishing company was welcomed by paediatric patients and their parents. Patients reported it made them feel calmer. Such a leaflet should be available widely to improve children's experience of coming to hospital. Collaborations between clinicians, academics and publishing companies can produce positive results for the paediatric population.

SUBMITTER: Clark EKR

PROVIDER: S-EPMC7883855 | biostudies-literature | 2021

REPOSITORIES: biostudies-literature

ACCESS DATA

Publications

Development and evaluation of an illustrated paediatric leaflet 'Coming to Hospital: a guide to what goes on'.

Clark Elisha K R EKR Sanghavi Sanjana S SS Farrell Stephen S Fritz Zoë Z

BMJ paediatrics open 20210212 1

<h4>Background</h4>A paediatric information leaflet was produced to better prepare patients for time spent in hospital and to improve experience by informing them what to expect.<h4>Methods</h4>The 'Coming to Hospital' leaflet was designed with input from paediatric research groups, and in collaboration with a children's author and publishing company. A questionnaire to evaluate the leaflet was developed; face validity was established in a pilot. The real-time patient experience of these leaflet ...[more]

PMID: 33644417

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Project description:BackgroundA study from a tertiary care center in Pakistan demonstrated that a leadership development intervention led to improved family experience of care outcomes. The objective of the current paper is to assess the implementation of this intervention and identify barriers and facilitators to inform sustainability and scalability.MethodsA working group designed the intervention using a theory-of-change model to strengthen leadership development to achieve greater employee engagement. The interventions included: i) purpose and vision through purpose-driven leadership skills trainings; ii) engaging managers via on-the-job mentorship programme for managers, iii) employee voice i.e., facilitation of upward communication to hear the employees using Facebook group and subsequently inviting them to lead quality improvement (QI) projects; and iv) demonstrating integrity by streamlining actions taken based on routine patient experience data. Implementation outcomes included acceptability, adoption, fidelity across degree & quality of execution and facilitators & barriers to the implementation. Data analyzed included project documentation records and posts on the Facebook group. Analysis indicated acceptability and adoption of the intervention by the employees as178 applications for different QI projects were received. Leadership sessions were delivered to 455 (75%) of the employees and social media communication was effective to engage employees. However, mentorship package was not rolled out nor the streamlined processes for action on patient experience data achieved the desired fidelity. Only 6 QI projects were sustained for at least a year out of the 18 approved by the working group. Facilitators included leadership involvement, real-time recognition and feedback and value-creation through participation by national and international celebrities. Challenges identified were the short length of the intervention and incentives not being institutionalized. The authors conclude that leadership development through short training sessions and on-going communications facilitated by social media were the key processes that helped achieve the outcomes. However, a long-term strategy is needed for individual managerial behaviours to sustain.

Project description:BackgroundPackage leaflet provides information about medicinal product to the user. Printed leaflet is familiar and available, however poorly legible, especially when containing multiple languages. It is resourceful to update, has potential to go missing or get damaged, and is environmentally burdensome. The pharmaceutical manufacturers in the Baltic countries have been granted permission to market selected hospital medicinal products without printed package leaflet. The industrial pilot project is expected to promote availability of medicinal products and patient safety via increased access to medicinal information.ObjectiveOnly few countries in Europe have derogated from Article 58 of Directive 2001/83/EC. Knowledge about the effects of removal of paper package leaflet from the medicinal product is limited, and related publications are scarce. Current interview study is identifying the obstacles during the implementation of the industrial project, investigating the potential environmental impact, and searching for further opportunities for the package leaflet in development of medicinal products.MethodsReal-time person-to-person semi-structured interviews with relevant stakeholders were conducted, and transcripts were analysed by content analysis to identify themes.ResultsResults demonstrated general support for removing package leaflet from selected hospital products. Main difficulties of the industrial project regarded the need for clear communication and practical disadvantages of project setup. Main benefits included educational aspect of increasing awareness about product information and strengthened collaboration. Majority of participants felt doubtful about the impact of the industrial project on people's awareness of ecological issues and they admittedly lacked sufficient information on the environmental impact of pharmaceutical packaging.ConclusionThe removal of paper leaflet could be extended to more products based on the positive feedback for the industrial pilot project. However, it is paramount that the format of electronic product information would need to be enhanced first to improve readability.

Dataset Information

Development and evaluation of an illustrated paediatric leaflet 'Coming to Hospital: a guide to what goes on'.

Background

Methods

Results

Conclusion

Publications

Development and evaluation of an illustrated paediatric leaflet 'Coming to Hospital: a guide to what goes on'.

Similar Datasets

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