Persistent inequitable design and implementation of patient portals for users at the margins.

ABSTRACT:

Objective

Diane Forsythe and other feminist scholars have long shown how system builders' tacit assumptions lead to the systematic erasure of certain users from the design process. In spite of this phenomena being known in the health informatics literature for decades, recent research shows how patient portals and electronic patients health records continue to reproduce health inequalities in Western societies. To better understand this discrepancy between scholarly awareness of such inequities and mainstream design, this study unravels the (conceptual) assumptions and practices of designers and others responsible for portal implementation in the Netherlands and how citizens living in vulnerable circumstances are included in this process.

Materials and methods

We conducted s

SUBMITTER: Goedhart NS 

PROVIDER: S-EPMC7883982 | biostudies-literature | 2021 Feb

REPOSITORIES: biostudies-literature