The Patient Experience: Symptoms and Impact of Dry Age-Related Macular Degeneration.

ABSTRACT:

Introduction

No published literature systematically explores the dry age-related macular degeneration (AMD) patient experience. To inform the development of patient-reported outcome measures (PROMs), the important and relevant signs, symptoms, and impacts for patients with dry AMD were identified.

Methods

A holistic approach was used to capture, define, and organize the signs, symptoms, and impacts that are important to patients with dry AMD. Qualitative evidence was identified through a targeted literature review and clinician (N = 5) and patient (N = 20) interviews. The targeted review was expanded to include patients with AMD, as few studies specific to dry AMD were identified. The qualitative evidence was incorporated into a conceptual model that included the signs, symp

SUBMITTER: Schultz NM 

PROVIDER: S-EPMC7886930 | biostudies-literature | 2021 Mar

REPOSITORIES: biostudies-literature