Improving Patient-Centered Communication about Sudden Unexpected Death in Epilepsy through Computerized Clinical Decision Support.

ABSTRACT:

Background

Sudden unexpected death in epilepsy (SUDEP) is a rare but fatal risk that patients, parents, and professional societies clearly recommend discussing with patients and families. However, this conversation does not routinely happen.

Objectives

This pilot study aimed to demonstrate whether computerized decision support could increase patient communication about SUDEP.

Methods

A prospective before-and-after study of the effect of computerized decision support on delivery of SUDEP counseling. The intervention was a screening, alerting, education, and follow-up SUDEP module for an existing computerized decision support system (the Child Health Improvement through Computer Automation [CHICA]) in five urban pediatric primary care clinics. Families of children with

SUBMITTER: Grout RW 

PROVIDER: S-EPMC7889427 | biostudies-literature | 2021 Jan

REPOSITORIES: biostudies-literature