Development of an online research platform for use in a large-scale multicentre study.

ABSTRACT: Participation in research can be beneficial for patients and healthcare providers, but may prove demanding at patient, clinician and organizational levels. Patient representatives are supportive of online research to overcome these challenges. The aim of this pilot study was to develop an online recruitment platform and test its feasibility and acceptability while evaluating the accuracy of participant-reported data. The online research platform was developed in a 1-day 'hackathon' with a digital design company. Women who underwent implant-based breast reconstruction in 2011-2016 were invited by letter containing the web address (URL) of the study site and their unique study number. Once online, participants learned about the study, consented, entered data on demographics, treatment receiv

SUBMITTER: Godden AR 

PROVIDER: S-EPMC7893475 | biostudies-literature | 2021 Jan

REPOSITORIES: biostudies-literature