Patient perspectives regarding gene therapy in haemophilia: Interviews from the PAVING study.

ABSTRACT:

Introduction

Exploring patient perceptions regarding gene therapies may provide insights about their acceptability to patients.

Objective

To investigate opinions of people with haemophilia (PWH) regarding gene therapies. Moreover, this study aimed to identify patient-relevant attributes (treatment features) that influence PWH's treatment choices.

Methods

Semi-structured individual interviews were conducted with Belgian PWH, types A and B. A predefined interview guide included information sections and open, attribute ranking and case questions. Qualitative data were organized using NVivo 12 and analysed following framework analysis. Sum totals of scores obtained in the ranking exercise were calculated per attribute.

Results

In total, 20 PWH participated in the i

SUBMITTER: van Overbeeke E 

PROVIDER: S-EPMC7894464 | biostudies-literature | 2021 Jan

REPOSITORIES: biostudies-literature