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ABSTRACT: Objective
To describe a novel, five-phase approach to collecting qualitative data from hard-to-reach populations using crowdsourcing methods.Methods
Drawing from experiences across recent studies with type 1 diabetes and congenital heart disease stakeholders, we describe five phases of crowdsourcing methodology, an innovative approach to conducting qualitative research within an online environment, and discuss relevant practical and ethical issues.Results
Phases of crowdsourcing methodology are: (I) Preparing; (II) Forming Crowds; (III) Collecting Crowdsourced Data; (IV) Coding and Analyzing Crowdsourced Data; and (V) Generating and Disseminating Findings. Iterative feedback from stakeholders is obtained in all five phases. Practical and ethical issues include acces
SUBMITTER: Sood E
PROVIDER: S-EPMC7896271 | biostudies-literature | 2021 Feb
REPOSITORIES: biostudies-literature