Long-term health-related quality of life and burden of disease after intensive care: development of a patient-reported outcome measure.

ABSTRACT:

Background

ICU survivorship includes a diverse burden of disease. Current questionnaires used for collecting information about health-related problems and their relation to quality of life lack detailed questions in several areas relevant to ICU survivors. Our aim was to construct a provisional questionnaire on health-related issues based on interviews with ICU survivors and to test if this questionnaire was able to show differences between ICU survivors and a control group.

Methods

Thirty-two ICU survivors were identified at a post-ICU clinic and interviewed at least six months after ICU discharge. Using an established qualitative methodology from oncology, all dysfunctions and disabilities were extracted, rephrased as questions and compiled into a provisional questionnaire

SUBMITTER: Malmgren J 

PROVIDER: S-EPMC7905420 | biostudies-literature | 2021 Feb

REPOSITORIES: biostudies-literature