A survey of the European Reference Network EpiCARE on clinical practice for selected rare epilepsies.

ABSTRACT:

Objective

Clinical care of rare and complex epilepsies is challenging, because evidence-based treatment guidelines are scarce, the experience of many physicians is limited, and interdisciplinary treatment of comorbidities is required. The pathomechanisms of rare epilepsies are, however, increasingly understood, which potentially fosters novel targeted therapies. The objectives of our survey were to obtain an overview of the clinical practice in European tertiary epilepsy centers treating patients with 5 arbitrarily selected rare epilepsies and to get an estimate of potentially available patients for future studies.

Methods

Members of the European Reference Network for rare and complex epilepsies (EpiCARE) were invited to participate in a web-based survey on cli

SUBMITTER: Baumgartner T 

PROVIDER: S-EPMC7918306 | biostudies-literature | 2021 Mar

REPOSITORIES: biostudies-literature