Dataset Information

Patients' and healthcare professionals' beliefs, perceptions and needs towards chronic kidney disease self-management in China: a qualitative study.

ABSTRACT:

Objectives

To support the adaptation and translation of an evidence-based chronic kidney disease (CKD) self-management intervention to the Chinese context, we examined the beliefs, perceptions and needs of Chinese patients with CKD and healthcare professionals (HCPs) towards CKD self-management.

Design

A basic interpretive, cross-sectional qualitative study comprising semistructured interviews and observations.

Setting

One major tertiary referral hospital in Henan province, China.

Participants

11 adults with a diagnosis of CKD with CKD stages G1-G5 and 10 HCPs who worked in the Department of Nephrology.

Results

Four themes emerged: (1) CKD illness perceptions, (2) understanding of and motivation towards CKD self-management, (3) current CKD practice and (4) barriers, (anticipated) facilitators and needs towards CKD self-management. Most patients and HCPs solely mentioned medical management of CKD, and self-management was largely unknown or misinterpreted as adherence to medical treatment. Also, the majority of patients only mentioned performing disease-specific acts of control and not, for instance, behaviour for coping with emotional problems. A paternalistic patient-HCP relationship was often present. Finally, the barriers, facilitators and needs towards CKD self-management were frequently related to knowledge and environmental context and resources.

Conclusions

The limited understanding of CKD self-management, as observed, underlines the need for educational efforts on the use and benefits of self-management before intervention implementation. Also, specific characteristics and needs within the Chinese context need to guide the development or tailoring of CKD self-management interventions. Emphasis should be placed on role management and emotional coping skills, while self-management components should be tailored by addressing the existing paternalistic patient-HCP relationship. The use of electronic health innovations can be an essential facilitator for implementation.

SUBMITTER: Shen H

PROVIDER: S-EPMC7934774 | biostudies-literature | 2021 Mar

REPOSITORIES: biostudies-literature

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Publications

Patients' and healthcare professionals' beliefs, perceptions and needs towards chronic kidney disease self-management in China: a qualitative study.

Shen Hongxia H van der Kleij Rianne M J J RMJJ van der Boog Paul J M PJM Wang Wenjiao W Song Xiaoyue X Li Zhengyan Z Lou Xiaoping X Chavannes Niels N

BMJ open 20210304 3

<h4>Objectives</h4>To support the adaptation and translation of an evidence-based chronic kidney disease (CKD) self-management intervention to the Chinese context, we examined the beliefs, perceptions and needs of Chinese patients with CKD and healthcare professionals (HCPs) towards CKD self-management.<h4>Design</h4>A basic interpretive, cross-sectional qualitative study comprising semistructured interviews and observations.<h4>Setting</h4>One major tertiary referral hospital in Henan province, ...[more]

PMID: 33664078

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Dataset Information

Patients' and healthcare professionals' beliefs, perceptions and needs towards chronic kidney disease self-management in China: a qualitative study.

Objectives

Design

Setting

Participants

Results

Conclusions

Publications

Patients' and healthcare professionals' beliefs, perceptions and needs towards chronic kidney disease self-management in China: a qualitative study.

Similar Datasets

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