Patients' Understanding of Oncology Clinical Endpoints: Environmental Scan and Focus Groups.

ABSTRACT:

Background

Understanding treatment options is important for patients with cancer and their caregivers. This may be difficult, however, because oncology treatments are often approved based on complex clinical endpoints. The study aimed to explore lay understanding of oncology clinical endpoints by assessing the definitions of clinical endpoints available online and gathering qualitative focus group data on cancer survivors' and the general public's understanding of clinical endpoints.

Methods

We conducted an environmental scan to find Web sites accessible by a general audience that defined three clinical endpoints: overall survival, progression-free survival, and response rate. Next, we conducted a series of eight focus groups across the U.S. with cancer survivors (n = 36) an

SUBMITTER: Sullivan HW 

PROVIDER: S-EPMC7938416 | biostudies-literature | 2020 Dec

REPOSITORIES: biostudies-literature