Life satisfaction in families with a child in an Unresponsive Wakefulness Syndrome.

ABSTRACT:

Background

The article examines life conditions in families living together with a child in an Unresponsive Wakefulness Syndrome (UWS). Such families experience severe stress at financial, logistical, and existential level.

Methods

We investigated a large sample of families living with a UWS child (comprising 13% of the total population) and compared these families with families without a chronically ill child. A set of four questionnaires aimed to evaluate life conditions entails a total of 204 items. One of the questionnaires was developed by the corresponding author specifically for this study. The questionnaires were positively accepted by the persons concerned and permitted us to test six specific hypotheses.

Results

Life satisfaction (LS) in families with a UWS

SUBMITTER: Chadasch C 

PROVIDER: S-EPMC7938537 | biostudies-literature | 2021 Mar

REPOSITORIES: biostudies-literature