Identifying the nature and extent of public and donor concern about the commercialisation of biobanks for genomic research.

ABSTRACT: Various forms of private investment are considered necessary for the sustainability of biobanks, yet pose significant challenges to public trust. To manage this tension, it is vital to identify the concerns of relevant stakeholders to ensure effective and acceptable policy and practice. This research examines the aspects of commercialisation that are of most concern to the Australian public (n = 800) and patients who had donated their tissue to two large disease specific (cancer) public biobanks (n = 564). Overall, we found a commercialisation effect (higher support for public relative to private) in relation to funding, research location and access to stored biospecimens. The effect was strongest for research locations and access compared to funding. A latent class analysis revealed the p

SUBMITTER: Critchley CR 

PROVIDER: S-EPMC7940627 | biostudies-literature | 2021 Mar

REPOSITORIES: biostudies-literature