Ethical issues in genomics research on neurodevelopmental disorders: a critical interpretive review.

ABSTRACT:

Background

Genomic research on neurodevelopmental disorders (NDDs), particularly involving minors, combines and amplifies existing research ethics issues for biomedical research. We performed a review of the literature on the ethical issues associated with genomic research involving children affected by NDDs as an aid to researchers to better anticipate and address ethical concerns.

Results

Qualitative thematic analysis of the included articles revealed themes in three main areas: research design and ethics review, inclusion of research participants, and communication of research results. Ethical issues known to be associated with genomic research in general, such as privacy risks and informed consent/assent, seem especially pressing for NDD participants because of their pot

SUBMITTER: Mezinska S 

PROVIDER: S-EPMC7953558 | biostudies-literature | 2021 Mar

REPOSITORIES: biostudies-literature