Sickle cell disease in Grenada: Quality of life and barriers to care.

ABSTRACT:

Background

Grenada is a small, resource-limited Caribbean country with a high incidence of sickle cell disease (SCD). Since little is known about the challenges facing individuals living with SCD in the West Indies, we sought to assess barriers to healthcare and the impact of SCD on quality of life in Grenada.

Methods

Both adults aged 18+ (n = 19) and caregivers of children aged 2-17 (n = 26) completed validated survey measures regarding barriers to care and quality of life, along with a genetics knowledge questionnaire. Caregivers also completed a caregiver burden scale. Survey scores were calculated, and responses were analyzed for an association between demographic variables.

Results

The Barriers to Care Questionnaire, in which lower scores indicate more barriers,

SUBMITTER: Grygiel A 

PROVIDER: S-EPMC7963427 | biostudies-literature | 2021 Jan

REPOSITORIES: biostudies-literature