Patient and family perceptions of telehealth as part of the cystic fibrosis care model during COVID-19.

ABSTRACT:

Background

Cystic Fibrosis (CF) is a chronic multi-system disease best cared for at Care centers with routine monitoring by interdisciplinary teams. Previously, remote home monitoring technology has been explored to augment in-person care. During the COVID-19 pandemic, traditional in-person care was limited and CF centers rapidly adapted to a telehealth delivery model. The purpose of this study was to understand how people with CF (PwCF) and families of PwCF experienced the shift to telehealthcare delivery.

Methods

This was a cross-sectional survey-based study conducted in 11 CF Centers. Two surveys were designed (one for adult PwCF and one for parents/guardians of PwCF) by participating CF center members with patient and family partner input. Surveys were disseminated elect

SUBMITTER: Jaclyn D 

PROVIDER: S-EPMC7997421 | biostudies-literature | 2021 May

REPOSITORIES: biostudies-literature