The impact of COVID-19 in Dravet syndrome: A UK survey.

ABSTRACT:

Objectives

To understand the risks, impact and outcome of COVID-19 in people affected by Dravet Syndrome (DS).

Materials and methods

An anonymous cross-sectional online survey was conducted between June 17 and July 13, 2020, addressed to families of people with DS.

Results

A total of 116 responses were collected, from families of children (n = 86; 74%) and adults (30; 26%) with DS. The majority (106; 91%) were shielded at the family home during lockdown. Symptoms compatible with COVID-19 were reported in 22 (19%) individuals. Only four individuals with symptoms had a PCR swab test, none of which was positive. Only one symptomatic person had antibody testing (but not swab testing), which was positive. One person had repeatedly positive swab tests whilst in hospital for

SUBMITTER: Balestrini S 

PROVIDER: S-EPMC8013591 | biostudies-literature | 2021 Apr

REPOSITORIES: biostudies-literature