Caring ahead: Mixed methods development of a questionnaire to measure caregiver preparedness for end-of-life with dementia.

ABSTRACT:

Background

Family caregivers of persons with dementia often feel unprepared for end-of-life and preparedness predicts caregiver outcomes in bereavement. Existing questionnaires assessing preparedness have limitations. A multi-dimensional questionnaire assessing family caregiver preparedness for the end-of-life of persons with dementia is needed to identify caregivers at risk for negative outcomes in bereavement and evaluate the quality of strategies within a palliative approach.

Aim

To develop a multi-dimensional questionnaire titled 'Caring Ahead' to assess feelings of preparedness for end-of-life in family caregivers of persons with dementia.

Design

A mixed methods, sequential design employed semi-structured interviews, a Delphi-survey and pilot-testing of the quest

SUBMITTER: Durepos P 

PROVIDER: S-EPMC8022086 | biostudies-literature | 2021 Apr

REPOSITORIES: biostudies-literature