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Dataset Information

The psychosocial impact of COVID-19 within the first six months of the pandemic on youth with epilepsy and their caregivers.


ABSTRACT:

Objectives

We assessed the impact of COVID-19 on children with epilepsy and their families, focusing on epilepsy management, family routines, learning, and adherence to Centers for Disease Control and Prevention (CDC) pandemic guidelines (e.g., social distancing, mask wearing) within the first six months of the pandemic. Group differences in COVID-19 impact on families were also examined based on race and ethnicity, being medically and/or geographically underserved, and insurance status.

Methods

Participants (n = 131) included children with epilepsy and their families from two clinical trials. The Impact of COVID-19 on Pediatric Epilepsy Management (ICPEM) measure was developed and administered to caregivers online from April 2020 to September 2020 across four large pediatri

SUBMITTER: Modi AC 

PROVIDER: S-EPMC8035246 | biostudies-literature | 2021 Apr

REPOSITORIES: biostudies-literature