Ethical and Methodological Considerations for Evaluating Participant Views on Alzheimer's and Dementia Research.

ABSTRACT: The urgent need to expand enrollment in Alzheimer's disease and related dementia (ADRD) research has synergized calls for an empiric science of research recruitment, yet, progress in this area is hindered by challenges to measuring views toward ADRD research. This paper reports ethical and methodological considerations identified through a prospective qualitative study investigating ADRD patient and caregiver views on research recruitment and participation surrounding acute illness. Ethical and methodological considerations were identified through a combination of memoing, collaboration with a Community Advisory Board (CAB), and analysis of interview data from ADRD patients (N = 3) and/or caregivers (N = 28). These included risk for undue influence attributable to role ambigu

SUBMITTER: Benson C 

PROVIDER: S-EPMC8035267 | biostudies-literature | 2021 Feb-Apr

REPOSITORIES: biostudies-literature