Development and validation of a novel informational booklet for pediatric long-term ventilation decision support.

ABSTRACT:

Objectives

To provide accessible, uniform, comprehensive, and balanced information to families deciding whether to initiate long-term ventilation (LTV) for their child, we sought to develop and validate a novel informational resource.

Methods

The Ottawa Decision Support Framework was followed. Previous interviews with 44 lay and 15 professional stakeholders and published literature provided content for a booklet. Iterative versions were cognitive tested with six parents facing decisions and five pediatric intensivists. Ten parents facing decisions evaluated the booklet using the Preparation for Decision Making Scale and reported their decisional conflict, which was juxtaposed to the conflict of 21 parents who did not read it, using the Decisional Conflict Scale. Twelve home

SUBMITTER: Edwards JD 

PROVIDER: S-EPMC8035285 | biostudies-literature | 2021 May

REPOSITORIES: biostudies-literature