Health-related quality of life and coping strategies among families with Down syndrome children in South India.

ABSTRACT:

Background

Down Syndrome (DS) is the most common chromosomal disorder associated with intellectual disability. Besides clinical management, additional support to cope with the demands of life is also necessary. These parents are frequently unstable and forego their Quality of Life (QoL), suffer additional economic difficulties, ill health and have lower well-being than families without disabilities. Hence, the study intends to evaluate the Health-Related QoL (HR-QoL) and coping strategies among families of DS children.

Methods

This explorative, cross-sectional study was conducted among parents/caregivers of DS children (n = 51). Socio-demographic details, HR-QoL, coping strategies and perspectives on having a child with disability were obtained through a standard ques

SUBMITTER: Darla S 

PROVIDER: S-EPMC8042493 | biostudies-literature | 2021 Apr

REPOSITORIES: biostudies-literature