Development of the Advancing the Patient Experience in COPD Registry: A Modified Delphi Study.

ABSTRACT:

Background

Chronic obstructive pulmonary disease (COPD) is commonly managed by family physicians, but little is known about specifics of management and how this may be improved. The Advancing the Patient Experience in COPD (APEX COPD) registry will be the first U.S. primary care, health system-based registry following patients diagnosed with COPD longitudinally, using a standardized set of variables to investigate how patients are managed in real life and assess outcomes of various management strategies.

Objective

Gaining expert consensus on a standardized list of variables to capture in the APEX COPD registry.

Methods

A modified, Delphi process was used to reach consensus on which data to collect in the registry from electronic health records (EHRs), patient-reported

SUBMITTER: Edwards CL 

PROVIDER: S-EPMC8047610 | biostudies-literature | 2021 Jan

REPOSITORIES: biostudies-literature