Medical and end-of-life decision making in adolescents' pre-heart transplant: A descriptive pilot study.

ABSTRACT:

Background

Adolescents and young adults undergoing heart transplantation experience risks of morbidity and mortality both pre- and post-transplant. To improve end-of-life care for this population, it is necessary to understand their medical and end-of-life decision-making preferences.

Aim

(1) To examine adolescent/young adult decision-making involvement specific to heart transplant listing, and (2) to characterize their preferences specific to medical and end-of-life decision making.

Design

This cross-sectional research study utilized survey methods. Data were collected from October 2016 to March 2018.

Setting/participants

Twelve adolescent and young adult patients listed for heart transplant (ages = 12-19 years) and one parent for each were enrolled at a singl

SUBMITTER: Cousino MK 

PROVIDER: S-EPMC8063635 | biostudies-literature | 2020 Mar

REPOSITORIES: biostudies-literature