Designing a Liver Transplant Patient and Family Decision Support Tool for Organ Offer Decisions.

ABSTRACT:

Background

For liver transplant candidates on the waiting list, deciding to accept a donor organ with known or potential risk factors can be stressful and can lead to declined offers. Current education for patients and family often takes place during transplant evaluations and can be overwhelming and result in low retention and poor understanding of donor quality.

Methods

In the first phase, we sought to understand provider experiences when counseling patients about donor risks and donor offers. We conducted interviews and focus groups with liver transplant providers at 1 local center and at a national clinician conference. Twenty providers participated: 15 hepatologists and 5 surgeons. The provider feedback was used to create an initial outline of content that is consistent

SUBMITTER: Schaffhausen CR 

PROVIDER: S-EPMC8081471 | biostudies-literature | 2021 May

REPOSITORIES: biostudies-literature