Developing a Decision Aid to Facilitate Informed Decision Making About Invasive Mechanical Ventilation and Lung Transplantation Among Adults With Cystic Fibrosis: Usability Testing.

ABSTRACT:

Background

Cystic fibrosis (CF) is a life-limiting genetic disease that causes chronic lung infections. We developed an internet-based decision aid (DA) to help patients with CF make better informed decisions regarding treatments and advance care planning. We built the DA around two major treatment decisions: whether to have a lung transplant and whether to agree to invasive mechanical ventilation (intubation).

Objective

This study aims to conduct usability testing of the InformedChoices CF DA among key stakeholder groups.

Methods

We performed a patient needs assessment using think-aloud usability testing with patients with CF, their surrogates, and CF clinicians. Think-aloud participants provided feedback while navigating the DA, and after viewing, they answered surv

SUBMITTER: Dauber-Decker KL 

PROVIDER: S-EPMC8082389 | biostudies-literature | 2021 Apr

REPOSITORIES: biostudies-literature