Development and Content Validity of a Patient-Reported Experience Measure for Home Dialysis.

ABSTRACT:

Background and objectives

The population of patients with kidney failure in the United States using home dialysis modalities is growing rapidly. Unlike for in-center hemodialysis, there is no patient-reported experience measure for assessment of patient experience of care for peritoneal dialysis or home hemodialysis. We sought to develop and establish content validity of a patient-reported experience measure for patients undergoing home dialysis using a mixed methods multiple stakeholder approach.

Design, setting, participants, & measurements

We conducted a structured literature review, followed by concept elicitation focus groups and interviews among 65 participants, including 21 patients on home dialysis, 33 home dialysis nurses, three patient care partners, and eight neph

SUBMITTER: Rivara MB 

PROVIDER: S-EPMC8092066 | biostudies-literature | 2021 Apr

REPOSITORIES: biostudies-literature