Integrating Patient Priorities with Science by Community Engagement in the Kidney Precision Medicine Project.

ABSTRACT: The Kidney Precision Medicine Project (KPMP) is a multisite study designed to improve understanding of CKD attributed to diabetes or hypertension and AKI by performing protocol-driven kidney biopsies. Study participants and their kidney tissue samples undergo state-of-the-art deep phenotyping using advanced molecular, imaging, and data analytical methods. Few patients participate in research design or concepts for discovery science. A major goal of the KPMP is to include patients as equal partners to inform the research for clinically relevant benefit. The purpose of this report is to describe patient and community engagement and the value they bring to the KPMP. Patients with CKD and AKI and clinicians from the study sites are members of the Community Engagement Committee, with representa

SUBMITTER: Tuttle KR 

PROVIDER: S-EPMC8092068 | biostudies-literature | 2021 Apr

REPOSITORIES: biostudies-literature