What Matters to Patients and Their Families During and After Critical Illness: A Qualitative Study.

ABSTRACT:

Background

Despite increased emphasis on providing higher-quality patient- and family-centered care in the intensive care unit (ICU), there are no widely accepted definitions of such care in the ICU.

Objectives

To determine (1) aspects of care that patients and families valued during their ICU encounter, (2) outcomes that patients and families prioritized after hospital discharge, and (3) outcomes perceived as equivalent to or worse than death.

Methods

Semistructured interviews (n = 49) of former patients of an urban, academic medical ICU and their family members. Two investigators reviewed all transcripts line by line to identify key concepts. Codes were created and defined in a codebook with decision rules for their application and were analyzed using qualitative co

SUBMITTER: Auriemma CL 

PROVIDER: S-EPMC8101225 | biostudies-literature | 2021 Jan

REPOSITORIES: biostudies-literature