Former NICU Families Describe Gaps in Family-Centered Care.

ABSTRACT: Care and outcomes of infants admitted to neonatal intensive care vary and differences in family-centered care may contribute. The objective of this study was to understand families' experiences of neonatal care within a framework of family-centered care. We conducted focus groups and interviews with 18 family members whose infants were cared for in California neonatal intensive care units (NICUs) using a grounded theory approach and centering the accounts of families of color and/or of low socioeconomic status. Families identified the following challenges that indicated a gap in mutual trust and power sharing: conflict with or lack of knowledge about social work; staff judgment of, or unwillingness to address barriers to family presence at bedside; need for nurse continuity and meaningful

SUBMITTER: Sigurdson K 

PROVIDER: S-EPMC8106872 | biostudies-literature | 2020 Oct

REPOSITORIES: biostudies-literature