Making the patient voice heard in a research consortium: experiences from an EU project (IMI-APPROACH).

ABSTRACT: APPROACH is an EU-wide research consortium with the goal to identify different subgroups of knee osteoarthritis to enable future differential diagnosis and treatment. During a 2-year clinical study images, biomarkers and clinical data are collected from people living with knee osteoarthritis and data are analyzed to confirm patterns that can indicate such different subgroups. A Patient Council (PC) has been set up at project initiation and consists of five people from Norway, The Netherlands and UK. Initially, this group of individuals had to learn how to effectively work with each other and with the researchers. Today, the PC is a strong team that is fully integrated in the consortium and acknowledged by researchers as an important sounding board. The article describes this journey lookin

SUBMITTER: Taylor J 

PROVIDER: S-EPMC8107424 | biostudies-literature | 2021 May

REPOSITORIES: biostudies-literature