Expert opinion on the UK standard of care for haemophilia patients with inhibitors: a modified Delphi consensus study.

ABSTRACT:

Background and aims

Despite advances in haemophilia care, inhibitor development remains a significant complication. Although viable treatment options exist, there is some divergence of opinion in the appropriate standard approach to care and goals of treatment. The aim of this study was to assess consensus on United Kingdom (UK) standard of care for child and adult haemophilia patients with inhibitors.

Methods

A modified Delphi study was conducted using a two-round online survey. A haemophilia expert steering committee and published literature informed the Round 1 questionnaire. Invited participants included haematologists, haemophilia nurses and physiotherapists who had treated at least one haemophilia patient with inhibitors in the past 5 years. Consensus for 6-point Liker

SUBMITTER: Khair K 

PROVIDER: S-EPMC8111519 | biostudies-literature | 2021

REPOSITORIES: biostudies-literature