Patient-relevant health outcomes for hemophilia care: Development of an international standard outcomes set.

ABSTRACT:

Background

Patient-relevant health outcomes for persons with hemophilia should be identified and prioritized to optimize and individualize care for persons with hemophilia. Therefore, an international group of persons with hemophilia and multidisciplinary health care providers set out to identify a globally applicable standard set of health outcomes relevant to all individuals with hemophilia.

Methods

A systematic literature search was performed to identify possible health outcomes and risk adjustment variables. Persons with hemophilia and multidisciplinary health care providers were involved in an iterative nominal consensus process to select the most important health outcomes and risk adjustment variables for persons with hemophilia. Recommendations were made for outcome m

SUBMITTER: van Balen EC 

PROVIDER: S-EPMC8117824 | biostudies-literature | 2021 May

REPOSITORIES: biostudies-literature