Access to Care and Diagnostic Delays in Juvenile Dermatomyositis: Results From the Childhood Arthritis and Rheumatology Research Alliance Legacy Registry.

ABSTRACT:

Objective

To determine factors associated with diagnostic delays and outcomes in juvenile dermatomyositis (JDM) in the Childhood Arthritis and Rheumatology Research Alliance Legacy Registry (CLR).

Methods

This was a cross-sectional study of subjects aged 0 to 17 years with JDM enrolled to the CLR from 2010 to 2015. Access to care was measured by calculating the distance from the subject zip code of residence to the treating pediatric rheumatology center and determining the state density of pediatric rheumatologists based on the 2015 American College of Rheumatology Workforce Study. Delay was categorized as early (<30 days), typical (1-3 months), moderate (3-12 months), and severe (>12 months). Ordered generalized additive models were used to determine the association between

SUBMITTER: Neely J 

PROVIDER: S-EPMC8126761 | biostudies-literature | 2021 May

REPOSITORIES: biostudies-literature