Pragmatic MDR: a metadata repository with bottom-up standardization of medical metadata through reuse.

ABSTRACT:

Background

The variety of medical documentation often leads to incompatible data elements that impede data integration between institutions. A common approach to standardize and distribute metadata definitions are ISO/IEC 11179 norm-compliant metadata repositories with top-down standardization. To the best of our knowledge, however, it is not yet common practice to reuse the content of publicly accessible metadata repositories for creation of case report forms or routine documentation. We suggest an alternative concept called pragmatic metadata repository, which enables a community-driven bottom-up approach for agreeing on data collection models. A pragmatic metadata repository collects real-world documentation and considers frequent metadata definitions as high quality with potent

SUBMITTER: Hegselmann S 

PROVIDER: S-EPMC8130274 | biostudies-literature | 2021 May

REPOSITORIES: biostudies-literature