Daily life participation in childhood chronic disease: a qualitative study on the child's and parent's perspective.

ABSTRACT:

Objective

To understand how a child with a stable chronic disease and his/her parents shape his/her daily life participation, we assessed: (1) the parents' goals regarding the child's daily life participation, (2) parental strategies regarding the child's participation and () how children and their parents interrelate when their goals regarding participation are not aligned.

Methods

This was a qualitative study design using a general inductive approach. Families of children 8-19 years with a stable chronic disease (cystic fibrosis, autoimmune disease or postcancer treatment) were recruited from the PROactive study. Simultaneous in-depth interviews were conducted separately with the child and parent(s). Analyses included constant comparison, coding and categorisation.

Resu

SUBMITTER: Nap-van der Vlist MM 

PROVIDER: S-EPMC8137215 | biostudies-literature | 2021

REPOSITORIES: biostudies-literature