Views of patients with advanced disease and their relatives on participation in palliative care research.

ABSTRACT:

Background

Patients with advanced disease may not be invited to participate in research based on the assumption that participation would be too burdensome for them. The aim of this study was to explore how patients with advanced disease and their relatives evaluate their experience with research participation.

Method

This study used data from two parts of a larger project. The first dataset was a cross-sectional questionnaire study focused on priorities at the end of life. The second dataset used a longitudinal design with structured interviews on prognostic awareness. In both studies, participants evaluated their experience on a 5-point Likert scale and specified their motivation in an open-ended question. Data were collected in 6 hospitals in the Czech Republic with patien

SUBMITTER: Vlckova K 

PROVIDER: S-EPMC8180046 | biostudies-literature | 2021 Jun

REPOSITORIES: biostudies-literature