A Global Survey of Patient and Caregiver Experiences Throughout Care for Developmental Dysplasia of the Hip.

ABSTRACT:

Background

Diagnosis and treatment for developmental dysplasia of the hip (DDH) varies greatly depending on condition severity, age at diagnosis, and professional opinion. Little is known about patient experiences across the globe. We aimed to characterize global patient and caregiver experiences during DDH care and to highlight patient-identified priorities.

Methods

We developed a cross-sectional survey in collaboration with 7 DDH outreach organizations. DDH patients and/or their caregivers (above 18 y old) were invited to complete an international online survey about their experiences. Participants were recruited through web media of all collaborating organizations. Data collection took place over 3 months. Descriptive statistics were used to analyze quantitative results.

SUBMITTER: Gibbard M 

PROVIDER: S-EPMC8183474 | biostudies-literature | 2021 Jul

REPOSITORIES: biostudies-literature