Hispanic Perspectives on Parkinson's Disease Care and Research Participation.

ABSTRACT:

Background

Hispanics are under-represented in Parkinson's disease (PD) research despite the importance of diversity for results to apply to a wide range of patients.

Objective

To investigate the perspective of Hispanic persons with Parkinson disease (PWP) regarding awareness, interest, and barriers to participation in research.

Methods

We developed and administered a survey and qualitative interview in English and Spanish. For the survey, 62 Hispanic and 38 non-Hispanic PWP linked to a tertiary center were recruited in Arizona. For interviews, 20 Hispanic PWP, 20 caregivers, and six physicians providing service to Hispanic PWP in the community were recruited in California. Survey responses of Hispanic and non-Hispanic PWP were compared. Major survey themes were identi

SUBMITTER: Damron L 

PROVIDER: S-EPMC8203231 | biostudies-literature | 2021

REPOSITORIES: biostudies-literature