Expanding community engagement in HIV clinical trials: a pilot study using crowdsourcing.

ABSTRACT:

Objective

To assess the potential for crowdsourcing to complement and extend community advisory board (CAB) feedback on HIV clinical trials. Crowdsourcing involves community members attempting to solve a problem and then sharing solutions.

Methods

CAB and crowdsourced approaches were implemented in the context of a phase 1 HIV antibody trial to collect feedback on informed consent, participation experiences, and fairness. CAB engagement was conducted through group discussions with members of an HIV CAB. Crowdsourcing involved open events intended to engage the local community, including interactive video modules, animated vignettes, and a creative idea contest. Open coding and analysis of emergent themes were conducted to compare CAB and crowdsourced feedback.

Results

SUBMITTER: Day S 

PROVIDER: S-EPMC8211407 | biostudies-literature | 2020 Jul

REPOSITORIES: biostudies-literature