"I decide myself"- A qualitative exploration of end of life decision making processes of patients and caregivers through Advance Care Planning.

ABSTRACT:

Background

The Singapore national Advance Care Planning (ACP) programme was launched in 2011 with the purpose of ensuring that healthcare professionals are fully aware of patients' treatment preferences. There is little research assessing the performance of such programmes in ethnically diverse Asian countries; hence, the purpose of this study was to qualitatively examine patients and caregivers' experiences with the ACP programme.

Method

We conducted interviews with 28 participants, thirteen of whom identified as proxy decision makers (PDMs) and the remainder as patients. Interviews focused on respondents' experiences of chronic illness and of participating in the ACP programme. Textual data was analysed through a framework analysis approach.

Results

Participants' na

SUBMITTER: Lall P 

PROVIDER: S-EPMC8213132 | biostudies-literature | 2021

REPOSITORIES: biostudies-literature