Receiving a diagnosis of young onset dementia: Evidence-based statements to inform best practice.

ABSTRACT:

Introduction

Better understanding of patient experience is an important driver for service improvements and can act as a lever for system change. In the United Kingdom, the patient experience is now a central issue for the National Health Service Commissioning Board, clinical commissioning groups and the providers they commission from. Traditionally, dementia care in the United Kingdom has focused predominantly on the individual experience of those with late onset dementia, while the voice of those with young onset dementia has been, comparatively, unheard. This study aims to improve the understanding of the personal experience of younger people undergoing investigation for dementia.

Methods

A modified Delphi approach was undertaken with 18 younger people with dementia and 1

SUBMITTER: O'Malley M 

PROVIDER: S-EPMC8216318 | biostudies-literature | 2021 Jul

REPOSITORIES: biostudies-literature