'Well-being paradox' revisited: a cross-sectional study of quality of life in over 4000 adults with congenital heart disease.

ABSTRACT:

Objective

The present cross-sectional study investigated quality of life (QOL) in a large cohort of German adults with congenital heart disease (ACHDs) in association with patient-related and clinical variables.

Design

Cross-sectional survey.

Participants

Between 2016 and 2019, a representative sample of 4014 adults with various forms of congenital heart defect (CHD) was retrospectively analysed. Inclusion criteria were confirmed diagnosis of CHD; participant aged 18 years and older; and necessary physical, cognitive and language capabilities to complete self-report questionnaires.

Primary and secondary outcome measures

QOL was assessed using the 5-level EQ-5D version (EQ-5D-5L). Sociodemographic and medical information was obtained by a self-devised questionna

SUBMITTER: Andonian CS 

PROVIDER: S-EPMC8220527 | biostudies-literature | 2021 Jun

REPOSITORIES: biostudies-literature