Development of a preliminary conceptual model of the patient experience of chronic kidney disease: a targeted literature review and analysis.

ABSTRACT:

Background

Patient-reported outcome (PRO) instruments should capture the experiences of disease and treatment that patients consider most important in order to inform patient-centred care and product development. The aim of this study was to develop a preliminary conceptual model of patient experience in chronic kidney disease (CKD) based on a targeted literature review and to characterize existing PRO instruments used in CKD.

Methods

PubMed, EMBASE and Cochrane databases and recent society meetings were searched for publications reporting signs/symptoms and life impacts of CKD. Concepts identified in the literature review were used to develop a preliminary conceptual model of patient experience of CKD, overall, and within patient subpopulations of differing CKD causes, seve

SUBMITTER: Flythe JE 

PROVIDER: S-EPMC8220773 | biostudies-literature | 2021 Jun

REPOSITORIES: biostudies-literature