Collaboration with people with lived experience of prison: reflections on researching cancer care in custodial settings.

ABSTRACT:

Background

Patient and public involvement is increasingly considered important in health research. This paper reflects, from both academic and lived experience perspectives, on involving people with lived experience in a study exploring cancer care in prison and how by doing this it enriched the research process.

Methods

This paper is based on written and verbal reflections of the lived experience researchers and academic researchers involved in a study exploring the diagnosis and treatment of people with cancer in prison. The study comprised interviews with people with cancer in prison, prison healthcare staff, oncology specialists and custodial staff. Lived experience researchers were involved throughout the research process, including co-conducting interviews with patient

SUBMITTER: Visser R 

PROVIDER: S-EPMC8238630 | biostudies-literature | 2021 Jun

REPOSITORIES: biostudies-literature