The illness experience for people with amyotrophic lateral sclerosis: A qualitative study.

ABSTRACT:

Aims and objectives

This study aims to gain a comprehensive understanding of the illness experience of amyotrophic lateral sclerosis (ALS) patients in China and the meaning they attach to those experiences.

Background

ALS is a progressive and fatal neurodegenerative disorder that significantly impacts individuals and families. There is a large number of patients with ALS in China. However, little is known about how they live with ALS.

Design

Phenomenological qualitative research was performed among twenty people with ALS from the neurology department of a tertiary hospital in China. Colaizzi's method was used to analyse the participants' data. The Consolidated Criteria for Reporting Qualitative Research (COREQ) was used as a guideline to secure accurate and complete r

SUBMITTER: Yuan MM 

PROVIDER: S-EPMC8248064 | biostudies-literature | 2021 May

REPOSITORIES: biostudies-literature